The Journey Begins

After spending some time reading a few fantastic, inspirational and interesting blogs, I felt like to was time to bite the bullet and write my own. It has been a long time since I have done any kind of writing, but it is such an essential skill to possess as a student. Practice makes perfect. Right?

Well, my name is Evan, and I am from an old mining village called Woodlands. It is part of a town called Doncaster, but when I think of where home is I often think of there. It’s where the majority of the experiences that shaped my life originate, and it’s still where plenty of my great family remain. I believe it was around the 1990s when the mine finally closed, so I was still fairly young and remember the impact it gradually had on the village as a whole. Looking back it was my first experience of how people’s employment opportunities can create social imbalances, and led to the exclusion of some social groups.

My early life is predominantly filled with fond memories of a real community spirit. As I grew up in the original houses built for the miners called the ‘squares’. There was a real sense that your neighbours became your extended family. The church had a huge impact on many peoples life’s, and to begin with I rarely remember a time when it went empty. My mother was responsible for opening up the church hall with my aunt. They were responsible for cleaning and making the meals for the elderly community (well I believed they volunteered). Many afternoons and weekends were spent creating havoc with my cousins and brother within the church hall. You would be surprised at the number of objects laying about in these old church halls.

When the vicar left the church, the great Michael Godfrey, the community spirit seemed to falter and break down. There didn’t exist that social support that had existed for families, and I remember it being especially impactful on mine. It is a sociologist dream. I am sure there are numerous opinions on what the tipping point to the village as a whole was. Be it the close of the mines, the limited work opportunities, the rise in crime, the breakdown of a religious/social group. I think each played an impact on the other.

I remember that as I reached secondary school the financial situation for most people within the village gradually took a turn for the worse. There was more of a reliance on social support, and milk/food vouchers. With that, there came an inherited stigma that you was part of a sub-normal part of society which did make life as a student difficult. It became less about who you are, and more about the shopping bag that you had been spotted with; Netto cursed so many children with their bright yellow bags. When you look at how societies views have shifted, it has almost become trendy to shop within a budget and to be seen shopping at the budget stores such as Lidl and Aldi.

I always enjoyed primary school, I felt a real sense of joy when I passed a milestone, and although I did have negative experiences in early childhood, I still remember it as a positive one. It changed when I reached secondary school. As I have said, the bullying and isolation felt in school was a real problem. I didn’t struggle with the work, just the individuals who also went to the school. There was no encouragement from the teachers, and I felt a real lack of motivation to excel as it was felt they had limited expectations of anyone’s achievements. So what was the point in trying to achieve? I remember reading since leaving a special measures report, from OFSTED, that recognised their circumstances limited the life chances of the students. Bleak reading.

I would do anything, and everything not to go to school. I would often wake up in the middle of the night to crawl into my mothers’ room to switch the alarm off. Such was my determination not to go. Much of my education came from books, and Channel Fours educational programming. Such a shame this doesn’t exist anymore, as it taught so much. I do feel a deep sense of regret and embarrassment of not only allowing a few narrow-minded individuals limit my experience of secondary school but more the added stress I had placed upon my mum from my utter refusal to go. I left school with a few GCSEs, less than what was expected of me at the time and settled into College.

Considering the course I am now studying; you would wonder what I was thinking when choosing my initial course: Advanced ICT, and computer science. I enjoyed the subject. I still do. I didn’t enjoy the work that came with it. It wasn’t long after starting college that I was offered an apprenticeship, which then progressed into an offer of a warehouse/computer system manager. Having a paycheck was a nice experience. It was a lot for an 18yr old, I had more money than I knew what to do with. And coming from an upbringing with very little, it felt like it was too much. I lasted about a year before it just became hard work enjoying any aspect of the role. It always felt like something was missing. So I applied for a position as a support worker.

I should explain why I went for this choice. I was lucky to have experienced a very diverse family background, with a mixture of people from different ethnic backgrounds and people with different disabilities, people with addictions, or a criminal history being in the family. I believe these people were valuable in shaping my own personal values. Ones which believe we should accept everyone’s individuality and differences while recognising what unites us. And for me, it was a family bond. I firmly believe we cannot judge people by our own expectations. Especially when we lack the ability to understand their experiences or life.

I was lucky to secure the position and spent 11+ years with the company that were enjoyable, educational and a highlight of my life experience. I no longer felt like an outsider or imposter in an environment. I had found an environment where I could be myself, and use my life experience and knowledge to make a positive impact in other people’s life. I made a great social group of friends, who I still believe are some of the greatest and were an invaluable source of support during some very challenging and tough times. They were a source of encouragement when I chose to go back to college to do my access course so I could apply for university. Powerful emotional support when my mum was going through treatment for cervical cancer, and supportive when I made the difficult decision to leave and focus on university. The individuals I worked with and helped to support, are still missed even now.

Challenging my own risk avoidance attitude continues to be a difficult one. I can stand up and advocate for another individual, and fight for their rights. But when it comes to my own, I still struggle to make myself heard. I have made, and continue to make strides. Within my working life, I showed my commitment and work ethic, having miminal time off (my longest running total was 6 years without a sick day – no rewards were given). Which is such a change when I look back on how I would fake illness on a weekly basis. Applying for college was such a nerve-wracking experience, I was putting myself back into an environment where those positive memories had slowly become eroded and replaced by negative ones. I had to study my GCSE subjects again in my first year alongside the college course full time with work, it was a stressful time but it was a success and meant I was one step closer to my dream.

I took a year out from college when my mum was diagnosed with Cancer, so I could still work and support her in her treatment and recovery. During this time I met my current girlfriend, and only long term stable relationship. That risk avoidance meant I just tempted to steer away from relationships due to bad experiences. She was and continues to be, such a positive spark in my life. She is not only a partner but a best friend. I can always rely on her support when I challenge myself to break those boundaries I have placed upon myself, and never complains when my focus may be elsewhere on studies.

Completing the second year of my college course meant I had to study long distance, which also meant I had to study without that peer support or direct support from the tutors. It was difficult and very stressful! Yet, somehow I passed with distinctions and even more surprisingly I was offered a place on my current course. It was the only course I had ever wanted to do.

And here we are. I’m a mature university student, studying a dual practitioner course in Learning Disability Nursing and Social Work. Taking every opportunity that comes my way, continuously trying to push my own boundaries and break my own barriers. I have discovered lecturers who are informative, knowledgeable, friendly and yet most importantly, passionate. It has been the highlight of my current teaching that I have lecturers who genuinely care about the inequalities in society and the lives of people with a learning disability. I have also made some great friends on the course, who are an excellent source of peer support. I wouldn’t have gotten through the first exam without them to bounce off.

Since starting university I have taken part in the University of Lifesavers. I have an upcoming place on the Council of Deans Leadership program, and I am hard at work creating accessible maps for people with a disability to use.

I believe we all have life experiences that shape who we are, these are just a snapshot of some of mine.

I am sure there are many errors in this writing; it was typed quickly on my phone. But I do thank you for taking the time to read, and I hope you have a great day. I will get around to spending a little longer proofreading as soon as I get the opportunity.

This is a photo of my first ever holiday. It remains one of my favourite photos.

An Un-Accessible Route

We live in a country with many different barriers, and despite working in the health sector for ten years, supporting adults with learning disabilities and physical disabilities, I failed to notice just how many barriers there are to people simply moving about in their communities; this was until I met my girlfriend.

She has Limb-Girdle Muscular Dystrophy, which means she now requires the use of a wheelchair to get around. When I plan to do anything with her I have always taken the time to look into how accessible the place is that we plan to visit. It may just be checking there is an accessible toilet, a ramp into the building, or a lift. While also booking any transport assistance we may need; ensuring there are ramps onto the train, and that the train station is accessible. I never imagined that I would need to see the state of the footpath or if there were misplaced street signs (there are many just placed centre path, and one local that blocks the dropped kerb).

We have visited so many wonderful places and some truly beautiful cities, despite having issues with the kerbs and footpaths. It all came to a head when we visited Leeds and decided to visit the Medical Museum. The museum was great. The journey there, not so great. Although we could have taken a bus to our destination, waiting for a bus to be told there are no available wheelchair spots can be a disheartening experience. So we decided to skip the bus and wander there. And Google Maps had informed that it was only a short 10-minute journey away. So why not? And I let it plot a route for us both. So of we went.

After 10 minutes we just assumed we were maybe moving a little slower then Google expected, we were following the map after all. Then we hit our first snag, a footpath that ended with a dropped kerb. Unfortunately, the following path had no dropped kerb to get onto the footpath. We had to walk into the road to follow the path to a point which we could get back onto the footpath. It was not a great experience, and not one I could imagine anyone in a wheelchair doing alone. We honestly believed it could not get any worse. We were obviously very wrong. The route took us past a working garage, with all the cars parked on the footpath. Back onto the road we went! We had six more footpaths that had no dropped kerb, or dropped kerbs that are impassable as the road around them is broken. In total, it took almost an hour to get where we wanted to. We obviously decided to try and get a bus back – no wheelchair spaces available. So we walked (and rolled) back, taking a completely different route, with ZERO issues.

How come this route had not been offered up as an option initially. It was accessible. The issue puzzled and annoyed me for the rest of the week. Google does not have a solution to offer people accessible routes, and only determines the route based on a projected time the journey would take. It makes the presumption that you have no disability. As we move to be a more equal society, it is not something I am not comfortable with. Things need to change.

It is the negative experiences we have in life that have the most impact on our wellbeing. It is something that I feel has a massive impact on a large part of society. I have talked to other people who have had similar experiences. These experiences can only lead to an increased sense of isolation for any individual with a disability, and they should have the same confidence, and support, to access their communities or explore new ones as anyone else. I believe that technology can be a powerful tool in creating a more accessible world and it is why I have been working on the accessible maps in my spare time.

Working on an accessible map has not been an easy task. There is a very limited toolset available to support their creation natively within Google Maps. I also have very limited experience of using any of the tools that are available, so it has been a steep learning curve. Ideally, I could create an app that allowed a community developed map. One which took into account the experiences people with disabilities have in navigating their community. Again, just no current knowledge of how to do this. But the five main features would be:

  1. Location of all pedestrian crossings.
  2. Location of all dropped kerbs with tactile paving.
  3. Location of all dropped kerbs.
  4. Location of any common obstacles.
  5. An option to use these plotting points to create an accessible route.

So far I have plotted over 16000 map points in Sheffield. It includes around 90% of the dropped kerbs, and pedestrian crossings in the Sheffield District; with some overlapping into Rotherham/Derbyshire districts. The data has taken some time to record, as I have had to either visit the street or use Google Street View to discover where the lowered kerbs and crossings are.

Ideally, the map pointers would be hidden to create a seamless system to create an accessible route.
This is where Google Maps has reached its limit with the map pointers that it allows.
I had to create a crossings icon to ensure I could easily spot the difference between a dropped kerb, and pedestrian crossing point.
The PEDS Icon.
It is by far the largest spreadsheet I have ever created, and it keeps on growing.

I have requested the information of dropped kerbs and pedestrian crossings using freedom of information requests. Unfortunately, no council has been able to respond with the location of dropped kerbs, and the data on pedestrian crossings is limited and taking time to sort through to ensure it is correct and complete.

There is a major issue with plotting this data onto Google Maps, as I have reached the limit of map pointers that the map allows. I have been in contact with the Google Access team on ways this could be managed.

As part of the project, I have taken the time to email a few charities about taking the idea on and further its impact. The time should be taken to say thank you to the amazing Kiera at Muscular Dystrophy UK and Kara at AccessAble. They have both supported the idea and helped to forward the project on so it could progress further.

Hopefully, I will be able to provide a part 2 at some point in the future. Thank you for reading and please take the time to check out the map below. Any help is always welcome.

https://drive.google.com/open?id=1sWPjwyKwByhOSWefyihmDusc5w_N-CBA&usp=sharing